7/28/09

I'll start with the bad news today so we can end with a bunch of good news:) Tyler is beside himself with out his supplements, literally bouncing off the walls. The kid needs his melatonin, hee hee. Last night around 8:45 he was honestly spinning in circles, over and over and over.. Iw as so worreid he was gonna get dizzy and fall and crack his head. My attempts at distraction to toys or books was not working and so I put him to bed. He's still in a crib and he has toy sin there so I figure at least he's safer in there and hopefulyl he'll start to wind down. Last I heard his toys was around 10:30 so I'm assuming he finally fell asleep soon after. Shew.. He was not very easy to awaken this morning and then it's really hard to get him to eat breakfast right away cause we gotta rush out the door. School gives him a snack but then he doesn't get lunch until he gets to daycare around 12:45 so breakfast is improtant! Anyway, we are donig the urine tests tonight and then can get him back on his supplements tomorrow.

Ok on to the good news.. I mean great news. I found out yesterday that my flex spending and health reimbursement accounts with reimburse for speech therapy costs for Tyler.. YAHOOOO!!!!!! I also found a new therapist.. The oversight speech for school recommended her and so did Carrie so I figure she's gootta be good. She is accepting new patients and meets with them one time per week at her home office which is near my work. So we calculated it out and we have enough money in those accounts for 4 months worth of speech so that will take us thru most of December once we get started (won't start til Sept)... we are super super excited we foudn an economical way for now to get Ty into see an excellent speech therapist. Let's get that kid talking :) He tries so hard. Ben and I were cheerign him on today. I was trying to get Ben excited abotu TYler talking too, so we were clapping and saying yeah Tyler, and having a godo time with it when Tyler was making sounds. So our next steps... finding a music therapist.. that research is in the works too. YIPPEEEE....


Ok so as if that's not good enough news, I am in heaven with this new doctor! Get this.. he communicated with me via email.. HALLELUJAH.. If any of you know me well, I don't like phones very much and never really have a lot of time to talk on the phone unless I'm coming or going to work and then its' not typically business hours and then i'm either at work where I shouldn't be on personal calls or at home where there is mass chaos in the background so I was super excited to see an email from the new DAN Doctor/pediatrician in my in box this morning. It had a summary letter of the appt of both boys as well as the inital blood work results we had done for Ty.


Ok so the summary of the letter is.. Tyler is a petite boy.. his weight in the 5th percentile and the height in the 25th percetntile. THe doc say's its fine, he gets an adequate diet and at this point we should not worry too much about his intake (we always worry about this with both boys). So his impression was that he's a 3 year old boy with history of autism and nonregressive enceaphlopathy (darn small head.. those two could not be any more different, Ben's head is in the 90th percentile!) He has significant apraxia issues and a lack of interest in peer. He believes Ty is doing reasonably well and is doing blood tests and urine tests to look for metabolic insufficiencies and oxidative stress, food allergies, etc. For the chewing, we are starting him on lithium and magnesium and adding vitamin D and fish oil. Also, adding back B12 as previously stated in addition to TMG. His prelimanary blood work also came back and his iron came back low so we'll start him on those drops as well. Ok so you probably wonder where is the good news in all of that. The letter begins with this......History of developmental delay and currently has symptoms consistent with MILD AUTISM...... yes, that set the tone for a very happy letter in mind mind. We are very very very very very happy we made the change to the new doctor who is giving us much more organized planning and feedback than before.

Oh and on our daily bike ride last night, one of the neighbors said Hi, i told Tyler to say hi and he kind of smiled like he was being stubborn, i said Tyler say hi and then he waved. The neighbor commented on how well Tyler seems to be doing and said great job guys to us.. he said it's the first time he's seen Ty smile.

oh and again just so you don't think Ben is being left out, he's doing phenominal (except for potty training) and enjoyed some time with me at the toy store (we both were addicted) and grocery shopping this weekend. Last night we played Huggasaurus and were roared and snuggled.. he's such a snuggle bug.