10/16/10

Hello!!

A few weeks ago I posted on facebook that I needed a good sign. Something to let me know that I was making the right decisions. That night I ended up in the ER, hmmm, not the sign I had in mind, however, within just a few days the good news started to pour in, so now I know... our decisions as of late are the best for the family and there are more good things to come for us, yeah. I have so much good news to report that I'm afraid I may forget some of it.

We had an assistive technology meeting for Tyler the week before last. HIs teacher was the one pushing for another meeting (love it). THere were 10 ppl in the conferfence room, right away I loved that tyler was important enough to the district to have that many people in attendance. Two of the women in attendance were from the district and there were speech pathologists with a lot of experience with augmentive communication devices. I gave a brief opening of Tyler's history as only 1 person in teh room (OT) had been with Tyler since he joined the school. The woman from the district were blown away by TYler's potential as to what I told them and his teacher confirmed. They used a word for him that I can' t remember but that basically labelled him teaching himself to read. Everyone was in agreement he is a great candidate for a communhcation device and they immediately reserved one for him in the district. That set the stage for setting up goals for Ty. At first someone mentioned 5 communicative functions on the device (details will follow later) and then his teacher said, well how about 10? Hee hee, I actually mouthed "i love you" she's a big believer that motiviation has been Tyler's issue in the past, and that he very much is quite aware and knows what he's doing and it just needs to be pushed a little and with the introduction of electronics into the classroom, he's much more interested and engaged. oh that's a good story too, let me finish this one. Ty is gettign a device from the district which will be rented of sorts (we don' t pay) that can come home as well. Can't wait for him to get it, school wills how him how to use it. It's a dynavox.

Ok Ty's class this year is a joint classroom but the second classroom is sort of the more engaged and involved kids. Well they made a decision last week to have Tyler start his day in that classroom. They say there is a huge difference between last year and this year and he responds and stays engaged in circle time, makes choices, etc. This is very exciting. Also he has a new speech therapist this year and she voluntarily asked if she could go watch the private speech therapist work with Ty so they could work as a team, yeah, of course! She went last week. oh and big thanks to grandpa who takes Tyler to speech for us every Monday!

Oh..... we love the ACC, one of TYler's guardian angels, AMy works at the ACC. she called me the other day to tell me Tyler was awareded a scholarship (10 weeks) of one on one music therapy, yipeeee!! Right now we are just tryinh to work through scheduling issues. This bought me tijme to find a pediatrician...

and voila.. found a great one. Someone told me of an office that is great but they run sort of a lottery and you have to call at the beginning of the month and try to be one of the patients they accept as new. I called and got in. Upon their advice, yippee, they set up a "see if it's a good fit" meeting with the parent. Perfect for me because I had some pretty specific questions. 1) will you write a script for music therapy and 2) will you write a script for B12 shots so we no longer need a DAN doctor (this is the one that concerned me). Had the meeting this week and it went great! I loved the doctor, he was very open minded and really listened to everything and answered all of my questions great. He did tell me that he needed to talk to his partner abou tthe shots and get back to me. He called me the next day and said they'd do it! So the boys have an appt there coming up soon just so the doc can see them while they are healthy and get to know them, etc. I'm so excited and love the practice, it seems like a perfect fit.

Ok, I think that's all, I'm sure i"m forgetting something. Lots more news to report soon, lots of going on in our personal lives as well. Ben is phenominal honestly, loves his school and never wants to leave, very happy with the way things are turning out.

xoxoxo