GF/CF Update 2/1/08

The clinic session was cancelled today due to weather. Mom is going to take advantage of the extra time and take a few hours of ffrom work to get some of Tyler's grocery shopping done.


Tyler has been completely casein free for over a week and he's been gluten free for a few days (although we aren't 100% committed to the gluten free yet; wanting to get more options and making sure his body ha time to adjust w/o going through major gluten withdrawls). Anyway, we are seeing major improvements in his bowel movements. Without going into too much detail, it's the first time we've (mom, dad, daycare provider) seen normal bowel movements in Tyler. Typically his poo looks like little rabbit turds and never seems that he ever gets it all out. It's now much more normal and looks very similar to Ben's. Yes, I know gross, but this is great news for us because it means, if anything, teh diet is improving his digestive system. If the theory holds true... this will lead to improvements in his biochemistry which effect his neurological processes. The theory is that atusm and it's symptoms result from the incomplete breakdown of peptides derived from foods that contain gluten adn casein and also to excessive absroption of the peptides. The presence of these peptides cause disruption ito the biochemical and neuroregulatory processes in the brain. Fingers crossed :)

He also doesn't seem to be minding a bit. Both boys like the rice milk. Tyler is eating many of the same things that we eat, we just alter them for his diet where necessary. He still gets chicken nuggets, yogurt, applesauce and spaghetti. His ultimate favorite food is pizza and we did try a brand this weekend htat he wasn't so fond of, so maybe we'll try again in a few weeks and then if not, we'll try to make one from scratch and see if that works. All and all, other than the time spent shopping and planning, the diet has been pretty smooth. Once we become more experienced and have more staples in our house to start baking and freezing it will become even easier.